When the Cards Aren't Fair, Change the Game.
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
In 2023, I retired from being a full time middle school music teacher. I loved it and would do the whole 28-year gig again if I could. So many amazing kids and colleagues. SO...now as I am in my 50's, I have pivoted away from music, and I focus on advocacy for individuals living with … Continue reading Please allow me to introduce myself…
20 years ago, I was 20 pounds lighter. 20 minutes ago, I thought of that sentence which I typed 20 seconds ago. 20 years ago, I had more upper and lower body strength and I also had more body mass and less fat cells. I had more muscle control which allowed friends and family to … Continue reading MY FRIEND BOB
On August 26, at exactly 9:25—9 to 5—the top of the Empire State Building in New York City lit up pink. The antennas of Chicago’s Willis Tower—formerly the Sears Tower—lit up pink, too. So did the Ferris wheel at the Santa Monica Pier, which also sported a giant pink heart. The Hoan Bridge in Milwaukee; … Continue reading A GOOD PERSON
"If you weren't wearing your seatbelt, you would have died today." Those words were spoken to me by a police state trooper while I was sitting up on a stretcher at Frisbie Memorial Hospital in Rochester, New Hampshire. "That was a good piece of driving you did too. If you hadn't swerved right, the woman … Continue reading AUGUST 20, 1994
I will never forget the feeling of walking up the concrete ramp and seeing Fenway Park in Boston for the first time. I was 9 years old in the summer of 1982 and my father had procured 2 tickets to see the Boston Red Sox baseball team play the Kansas City Royals. Our town's recreation … Continue reading FOR MY LOVE OF THE GAME
The whispers started in junior high. What's wrong with him? What does he have? Why does he walk funny? What's his deal? What happened to him? Well, let me take a few paragraphs to answer these questions: He "has" a Bachelor of Music degree in education. He "has" a Master's in Counseling, almost 30 years … Continue reading WHAT DOES HE HAVE?
I was in grade 7. This was the first time in my life that I had multiple teachers. We were grouped into 'teams' of kids and this was junior high. The big time. Six elementary schools all merged into one building from all over town. New friends, rotating schedule of classes and something called Unified … Continue reading 1985-86
I have been traveling, spending time off screen and with my family and friends. I thank those of you who have checked on me making sure that I am ok. I am more than ok. Recently, I floated in Crystal Lake for a few hours in the sun, I helped develop and present a bunch … Continue reading The 4th of July
So, let me start with this. HERE is a fun website to see how your elected local official in New Hampshire voted on issues that matter to you. It's a trove of information that I think you should know. Politics is local right? If everyone is paying attention, even the local officials need to let … Continue reading ETHICS OF RECIPROCITY
"No one is normal. It only looks that way from across the street." This is a quote from the HBO/MAX show called DTF St. Louis. I found it to be dark, but funny, and pretty engaging. I'll spare you the full plot review because that isn't the focus of this plot. The point is that … Continue reading SITUATION NORMAL?
Dear Dad It's been a long time since I have written. Apologies. As you know, I have been pretty busy over here with several projects and getting ready to make mom a grandmother for the second time. My wife is feeling good as we approach the November due date. I know you will be keeping … Continue reading DEAR DAD (1)
Moeschen! 