Leverage the hand you've been dealt
All of us receive the same amount of hours in a day. Some of us work the clock and divide up our time into neat slices of pie, while some of us simply eat pie and have no idea what time it is. I have always found interest in watching and asking how people spend … Continue reading FREE TIME
I grew up on a quiet street in a blue collar town about 30 miles north of Boston. Not quite postcard New England, but we did have our own horse track, amusement park, and a glider port where I have memories of small gliders being towed behind one-engine aircraft above the town and then hearing … Continue reading LAST HALLOWEEN
Think back a moment to when you were a kid. Not all the way back, but middle school or high school when you think you have life scoped out. You pretty much assume that all adults don't get it, talk too much without doing anything, and are no help to you at all. You likely … Continue reading LIFE HAPPENS
Let's have some fun today shall we? Of course we should! All of us NEED to laugh a few times during our waking hours, and so I present to you, loyal reader, things that people have said to me over the course of my life as I have ventured out in public with a manual … Continue reading SO I’VE HEARD…
Before writing I thought a lot about how I would like to present what I'm about to say. My brain hovered between scientific information, layman's terms and comparisons between Duchenne MD and the type that I live with. (Limb-Girdle 2e). Well, what the hell, let's do a bit of everything for those of you who … Continue reading WORLD DUCHENNE AWARENESS DAY
From 1972-1984, my life was normal. Well, looking back now, there were signs, but I never noticed nor would I have acknowledged them. As a kid, no one wants to be different and when you realize that you are, due to a physical problem, even at age 11, you start to question the whole world. … Continue reading THE JOURNEY
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
Thanks for coming back loyal reader, or bored person scrolling through your phone. When we last left our hero, he was sitting just outside the plane but inside the jetway waiting to be transferred to the aisle chair. You will recall that the aisle chair is a skinny, seat as hard as NH granite, straight … Continue reading air part iii – take off ‘eh?
Welcome back. I am now on my way to the airplane gate. I try to be about an hour early since that's when the gate agents open and I can speak with them. They need to (1) ask a bunch of questions regarding my power chair. (2) tag the chair (3) alert the ramp crew … Continue reading air part 2: Hannibal Lector
Many of you know that have been traveling around the U.S. and the world for years presenting at disability conferences. Like everything else, this was on pause during the worst of Covid. Recently, my wife and I weighed the risks and decided it was safe enough to fly from Boston (near home) to Phoenix, Arizona … Continue reading air
Patrick moeschen 