When the Cards Aren't Fair, Change the Game.
Last week, I traveled to Barcelona, Spain, and Rome Italy to speak with individuals living with Duchenne and Becker muscular dystrophy. It was an amazing trip, and the Italian meeting was attended by more than 500 people. This was their first live meeting since before Covid, and I am happy to tell you all that … Continue reading GREETINGS FROM ROME ITALY
Change how you see, see how you change. This is the motto of a man named Rick Guidotti. Professional photographer, world changer, and founder of Positive Exposure. I have been fortunate enough to meet Rick a few times and his story is amazing. So amazing that it made the blog this week. I first met … Continue reading CHANGE HOW YOU SEE…
Years ago, I had the pleasure of a weekend in Canada with 3 of my best buddies: Jim, Mike and Joe. All of us are still very close, and Mike married my sister, so he's family whether he wants to be or not! All of these guys have stood with me through thick and thin, … Continue reading MONTREAL
It's everywhere right? Stop and listen right now. If you are in the house, you can hear the appliances. If you're in public, you can hear snippets of conversation, human noises such as coughing, or perhaps traffic. Even if you are reading this while in a quiet, comfortable spot, you can hear your own breathing. … Continue reading Noise
I enjoy the CBS Sunday Morning Program. Recently I watched the annual Eat, Drink and Be Merry episode. (I also enjoy food) and I saw a story about the origin of baby carrots. It got me thinking... So many world changing ideas start out as something else. I learned that a farmer in California, who … Continue reading BABY CARROTS
As I've written before, I was diagnosed with muscular dystrophy in 1985. Science and technology has come a long way since then, but in some ways, not so much. Let me take you on a journey through time and where my mind has been wandering recently. In 1985, there was no effective treatment for any … Continue reading CRISPY
So, Vanessa and I have a repeating joke that goes like this: Me: You're my wife, so you have to fulfill my needs. Vanessa: Well if I am not fulfilling them, you are free and encouraged to look outside the marriage. Me: I'll make some calls.... And so on and so forth...Today's blog is an … Continue reading NEEDING/GETTING
Children of the 1980's had to actually wait for their favorite shows to come on television. We paid attention to the local listings in something called a newspaper, and made note of when holiday specials came on. We even had to sit through *GASP* all of the commercials. My own kids don't totally get this … Continue reading CARTOON JAZZ
I am often asked how someone with a chronic health condition using a wheelchair full-time can actually have a romantic relationship. (Yes, I'm serious). I am happy to say that as an adult, I have had several romantic relationships. As a youngster, I had no game, but as my personality grew, so did my self-worth, … Continue reading A LOVE STORY
"While there's life, there's hope." -John Lennon I remember thinking about that quote the night my second son was born. It was the cold, blustery evening of December 8, 2016 when he came into the world at 8:20PM EST crying and healthy. Those words popped into my head that night because I was thinking about … Continue reading DECEMBER 8
Moeschen! 