Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
Month: July 2022
air part iii – take off ‘eh?
Thanks for coming back loyal reader, or bored person scrolling through your phone. When we last left our hero, he was sitting just outside the plane but inside the jetway waiting to be transferred to the aisle chair. You will recall that the aisle chair is a skinny, seat as hard as NH granite, straight … Continue reading air part iii – take off ‘eh?
air part 2: Hannibal Lector
Welcome back. I am now on my way to the airplane gate. I try to be about an hour early since that's when the gate agents open and I can speak with them. They need to (1) ask a bunch of questions regarding my power chair. (2) tag the chair (3) alert the ramp crew … Continue reading air part 2: Hannibal Lector