When the Cards Aren't Fair, Change the Game.
Sounds like a heavy title huh? I've been playing with a thought that has been plaguing me for weeks after I read (and re-read and re-read) the following quote from smart guy and co-developer of the atom bomb, Richard Feynman: "For a successful technology, reality must take precedence over public relations, for nature cannot be … Continue reading GENETIC MEDICINE AND SPACE TRAVEL
I could get very used to speaking in front of medical professionals, residents, fellows, and any other labels that society has placed on these humans who have been called. to FIRST, DO NO HARM. Recently, I spoke with a few hundred of them and explained how and why HARM had been DONE to me, not … Continue reading GRAND ROUNDS PART II
In the quiet moments, I like to take inventory. Inventory in my mind. Sometimes I think about all kinds of great things that have taken place in my life. I'm sure that you do this as well. Maybe you think about a vacation, your kids, your family, your wedding day, the career, or maybe it's … Continue reading SILVER LININGS #9
For long periods of time, I feel like I am stagnant in terms of personal growth. I'm impatient and want to learn about human behavior as deeply and quickly as possible. I ask questions to everyone I am talking with whether I have known you for a million years or if I am speaking with … Continue reading IT LINES UP
I have found that too often in the professional world of work, disabled adults are celebrated for overcoming barriers that able bodied people can't begin to fathom. By letting it be known that the workplace employs individuals living with physical or mental disabilities, the employers are wonderful people who practice inclusion, equity and diversity at … Continue reading a quiet struggle
Hello everyone! Thursday came up quick this week, so here is the Friday version of my brain: If you have never read my blog before, do not start here, you will be confused. Maybe try this one first. Ok, that's enough housekeeping. Let's see who is up for a memory quiz today. I recently received … Continue reading MUSINGS AND FOLLOW-UPS
What an interesting title, right? It's like "MORE COWBELL", but totally different. O.K. I'm calming down over here. First off, I must thank SO many of you for mobilizing and reaching out with great advice and insight in order to help me get the $23,000+ medical helicopter ride covered by Anthem Insurance. If you are … Continue reading MORE HELICOPTER
The only time I have ever been on a helicopter, I was unconscious. As I have written before, late in the evening of January 2, 2024, I experienced the most terrifying moments of my life. I had been in a local emergency room all day feeling generally crummy after briefly losing consciousness for about 5 … Continue reading HELICOPTER
Recently I was invited to speak at a cardiac conference on the campus of Stanford University in Palo Alto California. Today I would like to share with you why this was a significant event for individuals living with different types of muscular dystrophy. First of all, there is only one way I am ever getting … Continue reading ALL HEART
Moeschen! 