Leverage the hand you've been dealt
Before writing I thought a lot about how I would like to present what I'm about to say. My brain hovered between scientific information, layman's terms and comparisons between Duchenne MD and the type that I live with. (Limb-Girdle 2e). Well, what the hell, let's do a bit of everything for those of you who … Continue reading WORLD DUCHENNE AWARENESS DAY
From 1972-1984, my life was normal. Well, looking back now, there were signs, but I never noticed nor would I have acknowledged them. As a kid, no one wants to be different and when you realize that you are, due to a physical problem, even at age 11, you start to question the whole world. … Continue reading THE JOURNEY
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
Patrick moeschen 