Leverage the hand you've been dealt
noun A person who is admired or idealized for courage, outstanding achievements, or noble qualities.NORTH AMERICAN: Another term for submarine sandwich. I'm the second one. Really. In my head I'm a sandwich. A bunch of shit thrown together with a condiment or two, held together by squishy matter like bread. Cold cuts such as turkey and … Continue reading HERO STATUS
From 1972-1984, my life was normal. Well, looking back now, there were signs, but I never noticed nor would I have acknowledged them. As a kid, no one wants to be different and when you realize that you are, due to a physical problem, even at age 11, you start to question the whole world. … Continue reading THE JOURNEY
Just the facts for you: There are 42 types of MD. Mine is called Limb-Girdle type 2e. The 2 refers to the fact that I have a recessive gene defect, and the "e" simply means it was the 5th type of gene mutation discovered and catalogued. Limb-Girdle (LGMD) is one of the milder forms of … Continue reading muscular dystrophy 101
Thanks for coming back loyal reader, or bored person scrolling through your phone. When we last left our hero, he was sitting just outside the plane but inside the jetway waiting to be transferred to the aisle chair. You will recall that the aisle chair is a skinny, seat as hard as NH granite, straight … Continue reading air part iii – take off ‘eh?
Welcome back. I am now on my way to the airplane gate. I try to be about an hour early since that's when the gate agents open and I can speak with them. They need to (1) ask a bunch of questions regarding my power chair. (2) tag the chair (3) alert the ramp crew … Continue reading air part 2: Hannibal Lector
Many of you know that have been traveling around the U.S. and the world for years presenting at disability conferences. Like everything else, this was on pause during the worst of Covid. Recently, my wife and I weighed the risks and decided it was safe enough to fly from Boston (near home) to Phoenix, Arizona … Continue reading air
In my grade 7 music classes each year, I teach a unit that covers Pioneers of American Rock-n-Roll. You cannot listen to and dissect the popular music of the 1950's without talking about Chuck Berry and his 1958 single "Johnny B. Goode." As many times as I have heard the song, it only came to … Continue reading Life in rock lyrics
When I began this blog, a very smart woman (my sister the PhD) told me that I should post at the same time each week to create flow, a habit, and dedicated quiet time to get some thoughts out. Those of you that played music with me in my younger days know that I made … Continue reading Milk duds
So this is a post that I have been circling around for awhile. If you are a Star Wars fan, this will mean more to you than those loyal readers who have never seen any of the movies. Fear not though....you will laugh anyway, trust me. I was 4, going on 5 when the original … Continue reading My kids and Star Wars
The title date is significant for reasons that I have rarely shared with anyone, but it marked the first time in my life that I realized none of us are fully in control of when we leave the Earth. It was a Saturday night and I was in grade 7. I was home, with my … Continue reading january 18, 1986
Patrick moeschen 