When the Cards Aren't Fair, Change the Game.
All of us receive the same amount of hours in a day. Some of us work the clock and divide up our time into neat slices of pie, while some of us simply eat pie and have no idea what time it is. I have always found interest in watching and asking how people spend … Continue reading FREE TIME
When I write each week, I think before I type and I type mostly for myself. Most times I have found writing to be therapeutic and healing for me simply to tell stories, laugh, and share with the universe that all of us are mostly the same on the inside. We all want to be … Continue reading ROOM 130 PART 2
One of my favorite asshats is in the news again this week: Elon Musk. A dear old friend texted me Tuesday with the news that Elon had mocked one of his own employees for having muscular dystrophy. Not shocking is the fact that this exchange is currently blowing up on the internet, especially on Twitter, … Continue reading ROOM 130
I read an excellent music biography written by Andy Summers, the guitarist for the 80's band The Police. With hits like Roxanne, Every Breath You Take and Don't Stand So Close to Me, Andy, along with Stewart Copland and Sting had a string of giant hits and then called it quits when they were at … Continue reading THE UNIVERSE CALLED
Last week, I traveled to Barcelona, Spain, and Rome Italy to speak with individuals living with Duchenne and Becker muscular dystrophy. It was an amazing trip, and the Italian meeting was attended by more than 500 people. This was their first live meeting since before Covid, and I am happy to tell you all that … Continue reading GREETINGS FROM ROME ITALY
Change how you see, see how you change. This is the motto of a man named Rick Guidotti. Professional photographer, world changer, and founder of Positive Exposure. I have been fortunate enough to meet Rick a few times and his story is amazing. So amazing that it made the blog this week. I first met … Continue reading CHANGE HOW YOU SEE…
Years ago, I had the pleasure of a weekend in Canada with 3 of my best buddies: Jim, Mike and Joe. All of us are still very close, and Mike married my sister, so he's family whether he wants to be or not! All of these guys have stood with me through thick and thin, … Continue reading MONTREAL
It's everywhere right? Stop and listen right now. If you are in the house, you can hear the appliances. If you're in public, you can hear snippets of conversation, human noises such as coughing, or perhaps traffic. Even if you are reading this while in a quiet, comfortable spot, you can hear your own breathing. … Continue reading Noise
I enjoy the CBS Sunday Morning Program. Recently I watched the annual Eat, Drink and Be Merry episode. (I also enjoy food) and I saw a story about the origin of baby carrots. It got me thinking... So many world changing ideas start out as something else. I learned that a farmer in California, who … Continue reading BABY CARROTS
As I've written before, I was diagnosed with muscular dystrophy in 1985. Science and technology has come a long way since then, but in some ways, not so much. Let me take you on a journey through time and where my mind has been wandering recently. In 1985, there was no effective treatment for any … Continue reading CRISPY
Moeschen! 