Patrick moeschen

I have a friend. Yes, yes, hold your applause. I finally made one. I have a friend that recently posted something that resonated with me enough that I just asked her if I could share it. As I have said many times, living with a chronic illness sucks out loud, and I would not wish … Continue reading BEAUTY →

"I wanna see feisty disabled people change the world." Judy Heumann Judy Heumann was a badass. She still is. I am reading her memoir right now, which was published in 2020. I had been vaguely aware of her name for years but I didn't dig into her life until she passed in March. I have … Continue reading HUMAN →

Remember a time before we all had a smartphone? It's like trying to remember a time before you had kids. Once here, it seems like it was "always like this." Not really. Actually, not even close. Lately, I have been doing some thinking and research into this technology and I also watched the Netflix documentary … Continue reading SOCIAL →

When I write each week, I think before I type and I type mostly for myself. Most times I have found writing to be therapeutic and healing for me simply to tell stories, laugh, and share with the universe that all of us are mostly the same on the inside. We all want to be … Continue reading ROOM 130 PART 2 →

One of my favorite asshats is in the news again this week: Elon Musk. A dear old friend texted me Tuesday with the news that Elon had mocked one of his own employees for having muscular dystrophy. Not shocking is the fact that this exchange is currently blowing up on the internet, especially on Twitter, … Continue reading ROOM 130 →

I read an excellent music biography written by Andy Summers, the guitarist for the 80's band The Police. With hits like Roxanne, Every Breath You Take and Don't Stand So Close to Me, Andy, along with Stewart Copland and Sting had a string of giant hits and then called it quits when they were at … Continue reading THE UNIVERSE CALLED →

Last week, I traveled to Barcelona, Spain, and Rome Italy to speak with individuals living with Duchenne and Becker muscular dystrophy. It was an amazing trip, and the Italian meeting was attended by more than 500 people. This was their first live meeting since before Covid, and I am happy to tell you all that … Continue reading GREETINGS FROM ROME ITALY →

Change how you see, see how you change. This is the motto of a man named Rick Guidotti. Professional photographer, world changer, and founder of Positive Exposure. I have been fortunate enough to meet Rick a few times and his story is amazing. So amazing that it made the blog this week. I first met … Continue reading CHANGE HOW YOU SEE… →

Years ago, I had the pleasure of a weekend in Canada with 3 of my best buddies: Jim, Mike and Joe. All of us are still very close, and Mike married my sister, so he's family whether he wants to be or not! All of these guys have stood with me through thick and thin, … Continue reading MONTREAL →