Today, September 7, is World Duchenne Awareness Day. This date was chosen because the gene that codes for the missing protein in Duchenne Muscular Dystrophy has 79 parts, called "exons." SO...the 7th day of the 9th month is 79....there you go. Clever no? If today is your birthday...then it's a double bonus. (I'm talking to … Continue reading BREAKING BARRIERS
AN IMPORTANT DEBATE
O.K. When growing up, I assumed that everyone lived like me. Actually, I didn't think about it until I started visiting friend's houses in elementary school. I learned that not everyone eats dinner at 6pm. I learned that some families have multiple floors AND multiple bathrooms. I realized that some families have 2 parents who … Continue reading AN IMPORTANT DEBATE
QUALITY
Let's make one thing clear: I am not an individual who needs to be "fixed." I am speaking about my chronic medical condition. I have seen hundreds of doctors in my life, maybe even more, and the vast majority are trained (and rightly so) to diagnose, discuss options (if there are any) and fix. Fix, … Continue reading QUALITY
CHEERLEADERS
It's great to have friends that also count as people in your corner. At times, it is also refreshing to learn that complete strangers will help you out as well. This realization helps to restore my faith in the human race. Let's call these people "cheerleaders." Cheerleaders is a quality name for this group of … Continue reading CHEERLEADERS
GAMES
I'm an '80's kid. Growing up I was a board game kid. I thought everyone had family game night. At our house it was Clue, or Monopoly when the whole family sat down, usually on a Saturday night. Looking back on those years, it was family bonding time except for one problem: when playing Monopoly, … Continue reading GAMES
TEN YEARS GONE
Then as it was, then again it will beAnd though the course may change sometimesRivers always reach the seaBlind stars of fortune, each have several raysOn the wings of maybe, down in birds of preyKind of makes me feel sometimes, didn't have to growBut as the eagle leaves the nest, it's got so far to … Continue reading TEN YEARS GONE
GOOD TIMES
As we go through life, we learn that a lot of what makes us happy has to do with the people we choose to surround ourselves with. It is often said that we are drawn to people with similar interests, or people that are going through shared experiences at the same point in life. I … Continue reading GOOD TIMES
YOU CAN’T MAKE THIS STUFF UP
Greetings my thousands of weekly readers. OK, greetings Brenda, Tina, Patty, and my wife. Thank so much, blah blah blah. haha. You can actually SEE, FEEL, and HEAR my snarky-ness (did I invent that word?) Well since I am feeling snarkier than usual today, let me share a funny-not-so-funny ongoing battle that I am having … Continue reading YOU CAN’T MAKE THIS STUFF UP
THE GOOD
The blog took a break last week as I was attending and speaking at Parent Project Muscular Dystrophy's (PPMD) annual connect conference in Dallas, which is located in the people's republic of Texas. Just kidding. Sort of. More about Texas later. PPMD turned 29 this year, and by my calculations, I have attended 25 of … Continue reading THE GOOD
TODAY
Today is the only day that we have. Yesterday is gone, and tomorrow is anyone's guess. I don't write this to be profound or deep, but I am sitting next to my boys while they eat popcorn on the porch and swing in the hammock. They are content to sit and talk right now. Tim...almost … Continue reading TODAY
Patrick moeschen 